
In planning for the delivery, it is very helpful to encourage
your patient to take a birthing class or go to their local
library and take out tapes that educate on vaginal births
and c-sections. It is helpful to be educated on this prior
to the delivery day. In the midst of a diagnosis, parents
may be too in shock or feeling too hopeless to do this.
However, it is one 'normal' thing that the parents can
do when their pregnancy seems so 'medical'.
It is
very important, as part of your patient's extended plan
of action, to discuss with them the possibility of a vaginal
birth vs. a c-section and the medications involved with
both. The more they know ahead of time, the easier it
will be to be part of the decision making process and
to "accept" the way their babies are born. Sometimes
parents have a vision in mind of what their delivery will
be like, and just like the pregnancy, the delivery may
not be what they dreamed. But, it can be close to it.
Encourage the family to think in their heart how they
would like their delivery to be and find a compromise
between that, and what is medically best for their babies.
Have
the parents visit the NICU unit so they can see what babies
look like at different gestational ages. This will help
prepare them for a possible early delivery. This will
also help them make provisions, if they indeed need the
special care this unit provides.
Encourage
them to read the enclosed information, as well as research
on their own, regarding the benefits to mother and babies
from breastfeeding. Breastfeeding is truly the best nutrients
to give babies and is a beautiful way to bond. Contact
the lactation consultant in your hospital and arrange
for a meeting with the mother. She will gladly meet with
the mother and help her prepare for breastfeeding prior
to the delivery. Breastfeeding is so much easier then
bottle-feeding and helps protect babies from many illnesses
including SIDS. It is also very helpful in helping mothers
quickly return their uterus to pre-pregnancy size along
with losing added weight effortlessly. It may take 3-4
weeks to really become comfortable with breastfeeding,
but after that, it becomes really natural. It always gets
better and easier. After parents have been through the
nightmare of TTTS and possibly the loss of one of their
twins, breastfeeding is one thing they can do that helps
them really bond with their children and feel like a good
mother. This is especially true because it comes from
the body they may 'feel' let them down during the pregnancy.
Many
parents take the time on bedrest to think of special gifts
they would like to give their babies when they are born.
Encourage your patient to think about a few special things
they would like to give to them such as baby blankets,
needlepointed ornaments, teddy bears, special matching
outfits, family pictures, letters of love, and/or other
special gifts. Sometimes parents are afraid to gather
these gifts because of the syndrome and being unsure if
their babies will even survive. But, let them know they
are already parents to their babies and this gives them
a chance to give their babies something special on the
day they come into our world. This is especially important
if their babies pass away (see compassionate deliveries.)
Parents that have done this feel very glad that they did.
It is also a tremendous help when a mother is on bedrest
because it give her something to do.
If the
parents have other children, encourage them to think of
others who could watch their children at the hospital
when the babies are being delivered. Often parents want
their children in the room with them during the delivery.
Have a conversation about their options.
Tell
the parents to bring a bag including a 35mm camera, video
camera (one can be borrowed), change of clothing for the
hospital stay, clothes to come home in, and toiletries.
Include their gifts for their babies in this bag, so they
won't be forgotten at home. The reason to tell them to
bring the photography equipment is also in case one or
both of their babies do not survive. If this happens,
the next priority is to make sure they have as many keepsakes
of their babies as possible. What happens at the delivery
is the key to their sense of peace for the rest of their
lives. It is crucial if one baby passes away, that the
delivery not be treated as a single delivery. Both babies
need to be seen together and the keepsakes need to be
of both so they go home with 'twin' keepsakes.
Talk with your patient about their placenta and how you
want it to be sent to pathology for an analysis, including
being photographed, to confirm twin to twin transfusion
syndrome. You can provide the pathology department with
our placental protocol. Other areas of interest to confirm
twin to twin transfusion syndrome will be the hematocrit
levels of each baby when they are born, and the differences
in the sizes of their hearts. Often many pathology departments
to not know how to analyze the placenta correctly for
TTTS. You can serve a tremendous service to this cause
and to the parents by making sure the pathology department
has the instructions that they need to do the job right.
And, please, make sure that the placenta does NOT get
thrown away. This happens all the time and destroys many
families' hopes of getting more information about what
happened to their babies. Remember, what happens at the
delivery is key to the sense of peace families feel for
the rest of their lives. It is often so serious, after
the loss of one or both twins, that marriages end in divorce.
Anything we can do to prevent that, we need to.
In planning for the
delivery, it is very helpful to encourage your patient
to take a birthing class or go to their local library
and take out tapes that educate on vaginal births and
c-sections. It is helpful to be educated on this prior
to the delivery day. In the midst of a diagnosis, parents
may be too in shock or feeling too hopeless to do this.
However, it is one 'normal' thing that the parents can
do when their pregnancy seems so 'medical'.
It is
very important, as part of your patient's extended plan
of action, to discuss with them the possibility of a vaginal
birth vs. a c-section and the medications involved with
both. The more they know ahead of time, the easier it
will be to be part of the decision making process and
to "accept" the way their babies are born. Sometimes
parents have a vision in mind of what their delivery will
be like, and just like the pregnancy, the delivery may
not be what they dreamed. But, it can be close to it.
Encourage the family to think in their heart how they
would like their delivery to be and find a compromise
between that, and what is medically best for their babies.
Have
the parents visit the NICU unit so they can see what babies
look like at different gestational ages. This will help
prepare them for a possible early delivery. This will
also help them make provisions, if they indeed need the
special care this unit provides.
Encourage
them to read the enclosed information, as well as research
on their own, regarding the benefits to mother and babies
from breastfeeding. Breastfeeding is truly the best nutrients
to give babies and is a beautiful way to bond. Contact
the lactation consultant in your hospital and arrange
for a meeting with the mother. She will gladly meet with
the mother and help her prepare for breastfeeding prior
to the delivery. Breastfeeding is so much easier then
bottle-feeding and helps protect babies from many illnesses
including SIDS. It is also very helpful in helping mothers
quickly return their uterus to pre-pregnancy size along
with losing added weight effortlessly. It may take 3-4
weeks to really become comfortable with breastfeeding,
but after that, it becomes really natural. It always gets
better and easier. After parents have been through the
nightmare of TTTS and possibly the loss of one of their
twins, breastfeeding is one thing they can do that helps
them really bond with their children and feel like a good
mother. This is especially true because it comes from
the body they may 'feel' let them down during the pregnancy.
Many
parents take the time on bedrest to think of special gifts
they would like to give their babies when they are born.
Encourage your patient to think about a few special things
they would like to give to them such as baby blankets,
needlepointed ornaments, teddy bears, special matching
outfits, family pictures, letters of love, and/or other
special gifts. Sometimes parents are afraid to gather
these gifts because of the syndrome and being unsure if
their babies will even survive. But, let them know they
are already parents to their babies and this gives them
a chance to give their babies something special on the
day they come into our world. This is especially important
if their babies pass away (see compassionate deliveries.)
Parents that have done this feel very glad that they did.
It is also a tremendous help when a mother is on bedrest
because it give her something to do.
If the
parents have other children, encourage them to think of
others who could watch their children at the hospital
when the babies are being delivered. Often parents want
their children in the room with them during the delivery.
Have a conversation about their options.
Tell
the parents to bring a bag including a 35mm camera, video
camera (one can be borrowed), change of clothing for the
hospital stay, clothes to come home in, and toiletries.
Include their gifts for their babies in this bag, so they
won't be forgotten at home. The reason to tell them to
bring the photography equipment is also in case one or
both of their babies do not survive. If this happens,
the next priority is to make sure they have as many keepsakes
of their babies as possible. What happens at the delivery
is the key to their sense of peace for the rest of their
lives. It is crucial if one baby passes away, that the
delivery not be treated as a single delivery. Both babies
need to be seen together and the keepsakes need to be
of both so they go home with 'twin' keepsakes.
Talk with your patient about their placenta and how you
want it to be sent to pathology for an analysis, including
being photographed, to confirm twin to twin transfusion
syndrome. You can provide the pathology department with
our placental protocol. Other areas of interest to confirm
twin to twin transfusion syndrome will be the hematocrit
levels of each baby when they are born, and the differences
in the sizes of their hearts. Often many pathology departments
to not know how to analyze the placenta correctly for TTTS.
You can serve a tremendous service to this cause and to
the parents by making sure the pathology department has
the instructions that they need to do the job right. And,
please, make sure that the placenta does NOT get thrown
away. This happens all the time and destroys many families'
hopes of getting more information about what happened to
their babies. Remember, what happens at the delivery is
key to the sense of peace families feel for the rest of
their lives. It is often so serious, after the loss of one
or both twins, that marriages end in divorce. Anything we
can do to prevent that, we need to.
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