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The TTTS Foundation Parent and Awareness Conference Walk

Raising Awareness and Funds for Research

Celebrating the lives of Kaitlyn and Kourtney and Honoring the Angels

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Kaitlyn and Kourtney

About The Foundation
The Twin to Twin Transfusion Syndrome Foundation is an international 501C.3 non profit organization established 29 years ago to solely provide immediate educational, emotional... learn more. The Twin to Twin Transfusion Syndrome Foundation is the first and only international 501c.3. nonprofit organization solely dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals and other caregivers before, during and after a diagnosis of TTTS. We are dedicated to saving the babies, including helping families get to treatment, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research and keeping families together the way twins are meant to be. Over 10,000 families have been helped since 1989 when the founder promised her twins, who suffered from TTTS, that they would be known and remembered, that she would find the answers, and that no parent would ever hear again, "There is nothing that can be done." Little Steven passed away. Matthew survived and is now on the Board of Directors fighting TTTS alongside his mother. reduce length of paragraph

Our Journey
Most of you know our story, and know it well. You know our two healthy, precious little outcomes, Kaitlyn and Kourtney. You've met them and held them in your arms. You have witnessed God's miraculous power and might in them. They have changed your lives too.

We were graciously blessed with BOTH of our little ones. But for so many others, the outcomes of TTTS are so very different. There are too many that find out they have TTTS too late. Then there are others that find out with time to spare but because of a lack of research, they helplessly watch their babies' health deteriorate until their hearts have beat their last.

My prayers were answered in the way I wanted. We have two beautiful babies to hold. I could close the door and leave this heart-wrenching experience behind me. Or, I can painfully recall my own emotions and try to pull from my own experience something that may help someone else. Much has been given and much will be expected. Jamie and I would like to raise awareness and beyond that, money that is needed for research.

In honor of Kaitlyn and Kourtney's first birthday, we will be having a TTTS BBQ Dinner Fundraiser at the Hillsborough County Cattleman's Building on April 13, 2013. We will be selling baked goods, shirts, raffle tickets, and other items at the event, all while celebrating the survivors and remembering the angels. In lieu of gifts we are asking that everyone make a donation online to the TTTS Foundation in their name OR purchase a BBQ Dinner ticket and join with us as we work to make a difference. For more information and to purchase your dinner tickets, please contact me at (813)478-0722. (Dinner tickets will be pre-sold only.)

There were a set of footprints that walked that path, but they were not mine, He was carrying me. TTTS changed my life. I want to make a difference. Please help me if you can. Thank You, Kim

Since 1989, The Twin to Twin Transfusion Syndrome Foundation has been solely dedicated to saving the lives of babies diagnosed with TTTS and helping, honoring and remembering all faced with this terrible disease. By sharing your love with us in such a meaningful way, babies will be saved and fighting TTTS will be kept a priority. Thank you for your donation and for making a difference in the lives of babies who desparately need us to care.

Goal $2500.00
Total Donations: $670.00

$0 27%

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Messages of Hope, Encouragement and Love

Love you guys! Sorry I cannot be there. I hope this donation helps reach your goal.
- Robyn Jones

Kim, Jamie,
I am blessed to know and be a part of your lives. I can not attend the fundraiser due to Church obligations, but you all are always in my prayers. God bless Kylie, Justin, Kaitlyn and Kourtney - they are angels on earth!!
- Chris, Greg, Ashlyn Schober

Wish we could be there. Here's a donation to help such a worthy cause. God Bless you and your precious family. We love you!!

- Aunt Carol and Uncle Derral

Although we are unable to make the event, we still wanted to help, so here\'s a donation in honor of your beautiful children.
- Scott and Mandy Cassin

Sorry we couldn't make the benefit. Happy Birthday to beautiful Kaitlyn and Kourtney! You are blessed with parents and family that love you!
- Mike and Michele Allen

Captain Boyette - God Bless your family! We can\'t make the benefit, but hope this donation helps in your goal to help others.
- Matt Malnory & Cindy Holland

I am so blessed to be a part of these beautiful babies lifes. Kim you have been blessed with 2 angels. And you are doing a wonderful job with all the kids.

I Love you!!!!!!!!!!!!!
- Linda Kent

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