|
To increase public awareness of twin to twin transfusion syndrome.
To
increase interest and support from healthcare professionals and
referral organizations.
To teach healthcare professionals to be sensitive to the special
needs of families with twin to twin transfusion syndrome from diagnosis
through delivery and beyond.
To increase awareness of the latest treatment options to save babies
affected by twin to twin transfusion syndrome.
To further develop and expand our international twin to twin transfusion
syndrome registry to collect medical data on babies from birth and
throughout their lifetime to track their health.
To publish our registry data in medical journals and continue to
be the primary resource for twin to twin transfusion syndrome medical
information
. ·
To seek endorsements from national and international medical associations
for our Foundation’s protocol for postpartum placental analysis
making it universally accepted.
To seek CPT codes from the AMA and ACOG for the various cutting
edge twin to twin transfusion syndrome treatments such as laser
therapy.
To organize the first international conference solely devoted to
twin to twin transfusion syndrome as a forum for the world’s
experienced specialists and researchers.
To pass legislation ensuring that Medicaid will cover laser surgery
for pregnant mothers without private insurance.
To pass legislation making the standard of care
for pregnancies with monochorionic placentas to include weekly ultrasounds
from 16 weeks through delivery.
|