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What Are the Available Treatments for TTTS

Treating of the Connecting Vessels

Fetoscopic Placental laser Therapy: Since TTTS does not exist in identical monochorionic (MC) twins without the connecting placental blood vessels, it seems reasonable to find a way to separate the twins' blood streams by destroying the connections. The availability of surgical lasers in the early 1980's led this innovative option, and the first fetoscopic laser occlusion of the connecting vessels was performed in 1988 by Dr. Julian E. De Lia at the University of Utah on a couple from Great Falls, Montana. By linking the laser to fetoscopy (the insertion of a tiny telescope into the pregnant uterus), doctors are able to see and destroy all the connecting vessels. This operation is the only TTTS treatment that can 'disconnect' the twins and stop both the chronic transfusion of blood from the donor to the recipient, and the acute or sudden transfusion should one baby pass away or become suddenly ill.

This laser surgery is now performed in centers throughout the world as more and more doctors are convinced that this will lead to the best outcomes. To the best of our knowledge, placental laser surgery results in the highest numbers of healthy survivors in those patients with previable (i.e., less than 25 weeks' gestation) onset or diagnosis of TTTS. Reports on this therapy currently indicate the following: 80-85% survival of at least one twin, 65-70% overall twin survival, 5% or less significant handicap rates in the survivors, and a treatment to delivery average interval of close to 10 weeks. The results may vary in different centers, and this may reflect different levels of experience or the actual surgical techniques used. The procedure involves general anesthesia for the mother, and the surgical complication rates also vary in different centers. These must be discussed with the individual doctors performing the surgery.

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Sophie and Sara

Sophie and Sara

I underwent the laser surgery on August 14th, 2002, at only 18 1/2 weeks of pregnancy. In the operating room, Dr. De Lia keeps prayer cards of Saints Gerard and Jude, the patron Saints of pregnancy and hopeless causes. Just before the surgery, we said a prayer together and asked St. Gerard to help our babies stay strong. I drifted off under the anesthesia, knowing that I was in the hands of a faith-filled surgeon who is totally dedicated to saving little twin babies with TTTS. On December 15th, 2002, over eighteen weeks after their in-utero surgery, our beautiful little angels Sophie and Sara were born

Katie, Mother of Sophie and Sara

The TTTS Foundation In The News


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Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
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Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
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Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
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World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

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