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How Often Does TTTS Occur?

Bullet Point Based on 2005 USA National Center for Health Statistics (4,138,349 total births), the rate of multiple births per year is now 1:30 (3.4%), or approximately 139,816 twins or higher multiples.

Bullet Point The majority of identical twins share a common (monochorionic) placenta, and of these approximately 15% go on to develop TTTS.

Bullet Point By extrapolating the number of expected identical twins (about one-third) from annual multiple births, and the number of twins with monochorionic placentas (about two-thirds), and from these the number thought to develop TTTS (about 15%), there are at least 4,500 TTTS cases per year in the U.S. alone:

139,816 X .33 X .66 X .15 = 4,568 cases of TTTS per year in U.S. (involving 9,500 or more babies)

Bullet Point Since spontaneous pregnancy loss (spontaneous abortion) and pregnancy terminations (elective abortions) that occur prior to 20 weeks go uncounted by the C.D.C., our estimate of TTTS cases may be very conservative.

Bullet Point Although infertility treatments have increased the rate of multiple birth, they have not diluted the expected incidence of identical twins even though multiple embryos are often produced and implanted. Studies show a higher rate of identical twins (up to 20 times with IVF) in women having these treatments than occur naturally.

There is approximately a 1 in 1000 chance of having TTTS in a given pregnancy.


Elizabeth and Emily

"Your foundation, along with Dr. De Lia, made this possible. We are very grateful for the information you provided via the Internet and the literature you had mailed to us overnight. Without these resources, we would not have learned of the option of laser surgery. Thank you so much" Elizabeth and Emily born at 34 weeks.

Parents Richard and Kate, and big brother Andrew.

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This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
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Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
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Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
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World Awareness Day - Dec. 7 2010

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