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Advice from Parents Who Have Been There

"You feel like you are on an emotional roller coaster. Pray and be as strong as you can be. You need a good support system." Loganville, GA

"Don't be afraid to speak up and ask what your options are, and don't be afraid to fight for them." Hartford, CT

"Get as much information as possible. Go to the best doctors you can. And, make your decision based on your own situation. What worked for someone else may not work for you. Pray and listen to your heart and your babies."

"Be pushy - ask lots of questions. Do not pretend to understand if you don't. Look for information from as many different sources as possible."

"Don't give up hope! Take one day at a time."

"Cry a lot. Get as much collective information as possible. See a specialist. Get a second or third opinion. Seek counseling."

"Get as much information as possible. If you don't like your doctor's answers, ask another."

"I was on Medicaid and I feel that I was mistreated. If TTTS is diagnosed, see specialized doctors as soon as possible."

"Don't dwell on the negative. Get educated, stay positive and believe that your babies will survive and thrive." Wickliffe, OH

"Educated yourself more on prematurity of babies. I was so focused on the TTTS and trying to extend the pregnancy that when we had to deliver at 27 weeks, I was unprepared and had to learn as I went through the NICU experience."

"Look at both medical and support from The TTTS Foundation information. See all options. Definitely speak with The TTTS Foundation for sharings of personal experiences."

"Do whatever you can to help. Don't listen to all the negatives."

"Make sure and get as much information as you possibly can before you decide on any one procedure."

"Take all the help and advise you can get. Remain positive, even at the worst. We found our frame of mind helped us to cope with each bump in the road and kept us from making a stressful situation more so."

The TTTS Foundation In The News


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Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
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Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
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Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
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World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
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