Twin to Twin Transfusion Syndrome Foundation Banner
International Office
411 Longbeach Parkway
Bay Village, Ohio 44140 USA
Help During Pregnancy Photo

Creating a Medical Plan of Action The Monochorionic Twin Placenta What Is TTTS? Monochorionic Placental Pictures Sonography and Appointment Questionaire Cervical Assessment, Nutrition and Bedrest Planning for Your Delivery Pregnancy Continues with a Loss Medical Research History of TTTS Placental Protocol International Registry Support From Families

What Are the Available Treatments for TTTS

Of all the questions that concern TTTS couples, this seems to be the most important so the answer will be the most comprehensive. The treatments for TTTS pregnancies depend, in part, on when in pregnancy the twins become affected. If the twins are mature enough to survive outside the womb (beyond 25 weeks), immediate delivery is an option for TTTS babies. However, the doctors must weigh the health effects of the prematurity on the twins versus the continued effects of the TTTS abnormalities as they try to prevent any handicaps in the survivors.

The Foundation continuously reviews the latest medical scientific reports (see section on Medical Research and Articles) to determine for TTTS couples which treatments appear to lead to the highest survival rates for the babies, the highest number of healthy survivors, and the lowest rates of prematurity for the twins. The Foundation also recognizes that it is impossible to save all TTTS twins and completely eliminate the risk of handicap in survivors regardless of treatment because of the nature of the placental abnormalities in TTTS.

The different treatments for TTTS can be classified into those that address the connecting blood vessels in the monochorionic (shared) placenta, those that treat the symptoms, and, sadly, those that reflect a sense of hopelessness on the part of the doctors. We know that none of the treatments have been evaluated in what doctors call 'randomized studies' or 'comparative trials.' A randomized trial means taking a group of TTTS cases and only treating half, then comparing the outcomes in the treated patients to the untreated patients. Such studies may be reasonable in other diseases, but the well documented, historic TTTS death and morbidity (damage) rates calls into question the ethics of such studies. The Foundation does not support this type of experiment for TTTS parents. A comparative trial takes TTTS cases and treats them with one of two or more available therapies to see which has the best outcomes.

click for story
Sophie and Sara

Sophie and Sara

I underwent the laser surgery on August 14th, 2002, at only 18 1/2 weeks of pregnancy. In the operating room, Dr. De Lia keeps prayer cards of Saints Gerard and Jude, the patron Saints of pregnancy and hopeless causes. Just before the surgery, we said a prayer together and asked St. Gerard to help our babies stay strong. I drifted off under the anesthesia, knowing that I was in the hands of a faith-filled surgeon who is totally dedicated to saving little twin babies with TTTS. On December 15th, 2002, over eighteen weeks after their in-utero surgery, our beautiful little angels Sophie and Sara were born

Katie, Mother of Sophie and Sara

The TTTS Foundation In The News


>

Raise Donations on Facebook

This is a fantastic and easy way to support the fight against TTTS and bring help and hope to families
>

Learn about TAPS- MUST do MCA dopplers on all pregnancies

A form of TTTS, TAPS can occur after laser surgery or during a monochorionic pregnancy with no signs of TTTS or problems.
>

Updated List of Questions

Questions to Ask at Every Ultrasound. Ultrasounds Must Be Weekly Starting at 16 Weeks.
>
World Awareness Day - Dec. 7 2010

TTTS Walk for the babies

Official TTTS Foundation Events
Copyright © 1997-2020 The Twin To Twin Transfusion Syndrome Foundation. All Rights Reserved
411 Longbeach Parkway, Bay Village, Ohio 44140 USA | 800-815-9211 |