We are so deeply sorry for your loss. Twin to twin transfusion
syndrome is such an evil disease. It does not care who it
hurts and only affects those that want their babies more than
anything in the world. We want you to know that we will never
stop fighting it and we will honor your babies in doing so.
Everyone in the Foundation has experienced
twin to twin transfusion syndrome with all different outcomes.
Those of us that have experienced the loss of our twins or
triplets, are ready to talk with you and let you know you
are not alone. Maybe you are feeling guilty, don’t know
how to get through certain days, or don’t know what
to say back to those that hurtfully say, “At least you
have your husband or you can try again.” Maybe you just
can’t get out of bed in the morning and you need to
know that ‘neither could we’. We have been there
and can help you. You are not alone.
The Twin to Twin Transfusion Syndrome
Foundation has a very supportive bereavement packet that we
can send to you that has been written by parents that know
your sorrow because they have lived it. They want to help
you. Included in the packet are booklets about anger, father’s
grief, stress on marriages, how to get through holidays, how
the mom can best help herself, poems, and more.
If you need another mom to talk with please
call the foundation at 1-800-815-9211.
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