April 13, 2002
The Twin to Twin Transfusion Syndrome
Founder and President
411 Longbeach Parkway
Bay Village, Ohio 44140
I am writing this in support of The Twin to Twin Transfusion Syndrome Foundation and their good work. The birth of an ill infant, or worse, the loss of a child under any circumstances is a life time crisis.
The work of support groups like The Twin to Twin Transfusion Syndrome Foundation can be critical to a family who is facing a pregnancy with TTTS or the loss of one or both of their twins to this condition. Parents often have feelings of guilt and need to understand that TTTS is not something they caused, it just happens sometimes.
In order for parents of TTTS pregnancies to understand and deal with what is happening to them they need, and deserve, good, timely diagnostic information. One of the most important tools for supplying this information is Diagnostic Sonography. The sonographic evaluation of fetal size, growth, and well-being is a complex process that requires the sonographer to not only have the required cognitive and psychomotor skills; it requires that they have an understanding of the disease processes so that they may modify the examination(s) appropriately for the individual case.
Because sonography is the most operator dependent diagnostic tools in modern medicine, it is unfortunate that there are no laws or regulations in the USA or in any state requiring that sonographers have appropriate education and certifications. The only recourse expectant parents have is to inquire if the sonographer is certified by the American Registry of Diagnostic Medical Sonographers (www.ardms.org).
I encourage you to assist The Twin to Twin Transfusion Syndrome Foundation in any way you can. I also appeal to you to help expectant parents understand that they should inquire if the person, physician, nurse, or others who may be using Diagnostic Sonography, is appropriately certified by the ARDMS.
Thank you for your time and consideration,
Terry J. DuBose, M.S., RDMS, FAIUM, FSDMS
Assistant Professor & Director, Diagnostic Medical Sonography Program
CHRP, University of Arkansas for Medical Sciences
Little Rock, Arkansas, USA