The Twin to Twin Transfusion Syndrome Foundation has a special
packet of education and emotional support for parents who
give birth to babies after a pregnancy with twin to twin transfusion
syndrome who need the extra special care of a neonatal intensive
care unit. If you go on to experience the NICU with your babies,
please call The Foundation and we will mail you a complete
packet over night express. We can also connect you with other
mothers who have experienced their babies in the NICU after
a pregnancy with twin to twin transfusion syndrome.
In this section, Stephanie Lerner-Ernsteen,
NICU Coordinator for the Foundation, writes about the premature
birth of her twin boys after a sudden twin to twin transfusion
syndrome which led to the their immediate birth. She has also
gathered links for you for immediate online NICU support as
well as books and special items that you can order. Stephanie
also leads the parent NICU group at Evanston Hospital in Evanston,
IL.
We place so much trust in the
angels involved in the NICU units. They are truly fighting
for our babies in every possible way. Remember, though, that
you are the parents to your children. You have the right to
be extremely involved in their care and have the final say
in their treatments. You are the ones needed the most by your
babies. They know how much you love them. They love you with
all their heart too.
We also encourage you to have
your babies in the same isolate. This has been very important
and helpful for babies who are twins to stay together as they
have been for such a long time. They actually do better this
way according to studies we have read. Twins should always
be together. This is something you can advocate for.
|
