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" We got most of our information from The TTTS Foundation.
We would not have been armed with the vital information we
needed had we not called The Foundation. We were able to make
sound, educated decisions based on all the information we
had." Charlotte, NC
"I received a lot of information
plus I had someone to talk to who had been through the same
ordeal. It also helped me to think about the treatment plan,
and to make my own decisions, not just to listen to my doctor
and let him decide on my babies' fate." Atlantic Beach,
FL
"Information provided, and fast!
Put me in contact with other parents with the same experience.
Provided information and first hand accounts of FLOC."
Chicago, IL
"We were very grateful to get updated
information. Many books we read had information from the 80"s.
It was also nice to know there were other families who had
experienced the same choices, fear, expectations and turmoils."
Paso Robles, CA
"Much more detailed information available
about treatments than from perinatologists. Excellent to be
able to talk to women who had TTTS and had positive outcomes.
Doctors John Elliot and Julian De Lia, excellent sources of
information." Libertyville, IL
"Very friendly, informative, and
financially helpful. Dr. De Lia called every week." Long
Beach, NC
"Luckily, I had the Internet on my
computer at work. I found the site and was able to educate
myself. I think the doctors should have known about your Foundation
the day I was told I had TTTS." Laureceville, GA
"Talking to volunteers was great
help. I knew I could get my questions answered and have somebody
to talk to who knows what it is." Sunnyvale, CA
"It let me know I wasn't alone and
that information was made available to our family." Troy,
MI
"Very helpful with information and
could not have been more helpful in helping me understand
and accept my feelings." Fort Wayne, IN
"You helped us contact the top people
who could help us and who gave us hope! They were all great
to talk to and willing to help our doctors too." Farmingdale,
NY
"They kept me thinking positive the
whole way. They gave me the facts and the choices I had. They
gave me the courage to ask the doctors questions." Tallahassee,
FL
"After being told that we had a severe
case of TTTS and the outcome looks grim, we called and talked
to The TTTS Foundation and were told it is not hopeless...many
babies have survived healthy! With that in mind, we had the
courage to continue on with what was called a doomed pregnancy
(both survived at 33 weeks)." Orland Park, IL
"Very helpful. We got a lot more
information on TTTS through The Foundation, even more than
our doctor told us." Cedar City, UT
"The TTTS Foundation gave us direction
and helped us find transportation and rooming for our treatment.
We are forever grateful for all they have done. If it were
not for them, we would have lost our children." Lafayette,
CO
"Your literature explained everything
in layman's terms. Without all that medical lingo I could
really understand what was going on and what my options were.
I also enjoyed your case histories." Boykins, VA
"It was helpful on helping me to
gather information. Talking to mothers who had experienced
this syndrome was enormously helpful..as no one else understood
our feelings." San Antonio,
TX
"They sent us information and helped
with travel arrangements. They were also very supportive and
comforting." Sandy, UT
"Quick information. Website was invaluable."
Marion, IA
"I got a lot of information I had
not before and could judge from it the quality of my doctors.
Also, after receiving it, I was able to do further research
regarding experts and technologies." Hamburg, GERMANY
"Got some great information and support.
When in a situation such as this, it is very helpful and comforting
to speak to someone who has been in your shoes." Brigantine,
NJ
"Great to learn more about TTTS than
what our doctor told us. I especially appreciated the packet
that was mailed promptly and the parent contact list. I spoke
with someone from the list several times." Brookfield,
IL
"They were wonderful. They let us
know everything we needed. They did not rush us. Very kind
and caring." Clovis, CA
"I was given a book by a friend about
The Foundation. It was helpful because the doctors gave me
a very general explanation of TTTS. I found more specific
information and more compassion from The Foundation."
Watertown, NY
It was very helpful in gathering information
and support. The website was wonderful. We were able to read
about TTTS and the laser treatment immediately and it probably
saved my donor baby's life." Goodlettsville, TN
"When diagnosed at 18 weeks, I used
the TTTS homepage to get information on the syndrome as well
as options for treatment. Wonderful homepage!!!" Lebanon,
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