
"You feel like
you are on an emotional roller coaster. Pray and be as
strong as you can be. You need a good support system."
Loganville, GA
"Don't be afraid to speak up and
ask what your options are, and don't be afraid to fight
for them." Hartford, CT
"Get as much information as possible.
Go to the best doctors you can. And, make your decision
based on your own situation. What worked for someone else
may not work for you. Pray and listen to your heart and
your babies."
"Be pushy - ask lots of questions.
Do not pretend to understand if you don't. Look for information
from as many different sources as possible."
"Don't give up hope! Take one day
at a time."
"Cry a lot. Get as much collective
information as possible. See a specialist. Get a second
or third opinion. Seek counseling."
"Get as much information as possible.
If you don't like your doctor's answers, ask another."
"I was on Medicaid and I feel that
I was mistreated. If TTTS is diagnosed, see specialized
doctors as soon as possible."
"Don't dwell on the negative. Get
educated, stay positive and believe that your babies will
survive and thrive." Wickliffe, OH
"Educated yourself more on prematurity
of babies. I was so focused on the TTTS and trying to extend
the pregnancy that when we had to deliver at 27 weeks, I
was unprepared and had to learn as I went through the NICU
experience."
"Look at both medical and support
from The TTTS Foundation information. See all options. Definitely
speak with The TTTS Foundation for sharings of personal
experiences."
"Do whatever you can to help. Don't
listen to all the negatives."
"Make sure and get as much information
as you possibly can before you decide on any one procedure."
"Take all the help and advise you
can get. Remain positive, even at the worst. We found our
frame of mind helped us to cope with each bump in the road
and kept us from making a stressful situation more so."
|